Long COVID Online Community

Hi everyone, I hope you are all feeling ok today. I got my second booster a week ago (Pfizer 4/5 bivalent) and have been feeling so much worse ever since- mostly with fatigue and brain fog. Before that I was feeling like the pacing, not working, low dose naltrexone etc, were starting to help me turn the corner 6 months in. I know there's some debate about whether a booster is a good idea for us, but I've had it so it's too late for me to change that decision. My question is have others had the same experience of going backwards and how long did that last? Has anyone felt bad for a bit and then got back on track? In other words, is there any chance I'm going to feel better soon???... I know, the million dollar question! Thanks, Dan

Dear all, It would be useful to share our experiences with treatments and the medical system. Maybe we could have separate categories - say: ·         What worked for me ·         Experience with the medical system o   GPs o   Long Covid centres o   Any other providers Based on our experiences we could list possible treatments that could be discussed with our GPs. We could share names of the providers that we found helpful. As there are no proven treatments (large scale double blind placebo trials) I think it is important not to be judgemental no matter how crazy some of the statements might be. My attitude is to be proactive. I am reading medical papers and while there are no proven treatments, at the same time there are many promising treatments. I don’t have 5 years to waste while the research into possible treatments is going on. I decided to experiment on myself provided that I judge that the experiments are reasonably safe and accessible. If there is some support for this approach I will share my experience so far and my plans for further treatment. Alan

I've been reading 'Through the Shadowlands" about how mould exposure triggered the author's Chronic Fatigue Syndrome and have noticed that my sinuses become reddened and inflamed when I am feeling particularly fatigued. I've had a mould specialist in to my apartment and now run a dehumidifier more frequently but am also testing more regular sauna visits and steam inhalation to see if that helps to reduce the symptoms of fatigue, has anyone else experienced anything similar?