Introduce yourself

Hi all, I'm Mia and live in the north of TAS. March 2020 my life changed when I got long covid and have been battling ever since but I've made some changes and have found some improvement. I find a daily dose of Asprin really helps (must be Aspro Clear) and switching to a mostly raw vegan diet and ditching sugar and carbs has REALLY made a difference to myself and my partner's health. Do some research on MAST cells and you'll see why inflammation in the body needs to be controlled. I will post some links to some good videos on youtube because one doctor really nailed it.

Hi my name is Gareth

Ive been diagnosed with long Covid and due to some of the symptoms my employer has stood me down from my job. You read online about how employers are suppose to support their employees in such time as this but I’ve got complete opposite. I feel I have been discriminated against

Hi everyone!

A very warm welcome to our new community members who have just recently joined the forum - @Tammy @Gareth @Ket @Sarah-Jane @Milo @Alex - if you haven't already done so, we would love for you to introduce yourselves here and to tell us a bit about your experience of Long COVID.

If you need any assistance with navigating the site (or any other questions or concerns!), please reach out.

Warmest,

Long COVID Support Admin

Hi I'm Alex. Just learning how to post here!

I caught COVID in early July 2022, so I'm relatively new. However I have prior experience of health conditions so some of the issues we experience with LC are familiar to me, including the challenges in gaining medical treatment.

I'm grateful to find a closed, moderated space. I find Facebook a bit intimidating and chaotic! I'm on an international LC support platform but there arent many Aussies so its good to have something local.

I have various symptoms, most of which are in the ME/CFS and dysautonomia favours of LC. I'm largely housebound and cant work at the moment, but Ive improved a lot over the last 3 months and hope to keep on doing so. "Largely housebound" offers much better quality of life than my previous "always bedbound"! I want to offer support and encouragement to people who are stuck in bed 💪

I like gardening, hiking, coffee, nature, books, animals and my science-based career. Some of these are on hold but I'm adapting 😁

Good morning 😊

A very warm welcome to our new community members who have just recently joined the forum - @Suzannewarby @Gill @Angela C @Bette Nelson - if you're feeling up to it and you're comfortable doing so, we would love for you to introduce yourselves here and to tell us a bit about your experience of Long COVID.

If you need any assistance with navigating the site (or any other questions or concerns!), please reach out.

Warmest,

Sally

Long COVID Support Admin

Dear all,

After reading about your struggles I feel guilty even mentioning mine. I had a reasonably mild COVID in December and recovered well. After around 6 weeks I developed shortness of breath, chest pains and heart palpitations. As I have an artificial heart valve, I just thought that the valve was failing. I went to see my cardiologist and did an ultrasound on my heart and everything was normal. Now three months later I stell have some shortness of breath and palpitations in particular after exercise. I feel consequences for about two days after going for a long walk. Otherwise, I am fine with my energy levels and ability to live and work.

I am consulting with my GP and have consulted with my cardiologist but not much help there. I try to read medical papers and it appears there are no proven treatments. I am determined to try whatever might help and is not likely to harm me. I even took a dose of psilocybin after reading that it helped some people. It worked quite well but only for about 5 days but that is not something that one can take too often. Next on my list is a course of steroids and yoga intensive breathing.

I was hoping to exchange information with other long COVID survivors (not sure what would be an appropriate term).

I wish you all good health and to recover ASAP.

Thank you very much for signing me into your group. I need all the help I can get.

May I respectively suggest that you review the otherwise good page on What is Long Covid.

1. Fatigue is listed in the WHO Definition

2. Fatigue is also mentioned twice in the additional symptoms.

3. Cough is also mentioned twice in the same list.

4. Breathlessness is mentioned twice (as well as being similar to Shortness of Breath)

I hope to make useful posts from time to time.

Regards

Gerry Hatton

Hello everyone, happy Tuesday.

How is everyone doing?

A very warm welcome to our new community members who have just recently joined the forum - @Brainhealthforall @Alan @Neil Duncan @Gerry Hatton @Trisha - if you're feeling up to it and you're comfortable doing so, we would love for you to introduce yourselves here and to tell us a bit about your experience of Long COVID.

If you need any assistance with navigating the site (or any other questions or concerns!), please reach out.

Warmest,

Sally

Long COVID Support Admin

Hi everyone. My name is Karen. My covid symptoms were very mild, however over the past 10 months I'm still experiencing extreme fatigue, breathlessness, brain fog and more recently anxiety and depression. I need to use a shower stool and walker. I live alone, which makes it challenging. However I do have family and friends who help and support me. I still get incredibly frustrated and sad at how my life has changed, from an extremely active person to one which needs to rest after completing the most simplest of tasks. One factor which is always at the back of my mind is HOW LONG IS THIS GOING TO LAST, because at the moment I feel a shadow of my former self

Hi everyone! I've been struggling with ongoing and often extreme fatigue for a couple of months now and it's been an ongoing battle to not have it compromise my job. I'm a Business Analyst and am required to engage with business stakeholders on a regular basis. It's been a blessing being able to work from home most of the week and I find that Zoom meetings are usually followed by lying down on my bed until the next meeting. I find that I have ongoing droopy eyelids, brain fog and am often dizzy and light-headed upon standing up from a lying down position. Has anyone else been experiencing similar symptoms?

Hello everyone 😀

I hope that you're all doing well!

I'm thrilled to welcome our new community members who have just recently joined - @SteveDM @Nicole @Valeria @katiekoogreenie @Gee @Anna - if you're feeling up to it and you're comfortable doing so, we would love for you to introduce yourselves here and to tell us a bit about your experience of Long COVID.

If you need any assistance with navigating the site (or any other questions or concerns!), please reach out.

Warmest,

Sally

Long COVID Support Admin

Thanks for the welcome Eve,

I‘ve been diagnosed with long-covid for over 2 months now. I’ve been having nightmares and the day to day is hard to leave the nightmares there where they were; from the night before. It almost feels as if who is inside is so blurred and my sense of self is severely foggy also. Can anyone else relate to this? Sensitivity to light as well as strange sensations in forehead and ears. I had vestibular neuritis (inflammation of the nerves connecting the ear to the brain, severely affecting balance and coordination) prior to the long-covid diagnosis, I’ve done some research and this along with long-covid affects how the brain processes information and the world - your outlook etc.

The standard sluggishness, fatigue, aches and pains all over body, as well as dizziness and lack of motivation too. I’ve also been diagnosed with pericarditis + myocarditis, on medication called colchicine for this daily for the next 3 months.

I’ve had to leave my job and move back home, thank God for my family. My quality of life is so diminished, this has had the absolute biggest impact on my life and ability to live freely to date…

Any feedback / people with similar feelings etc would be greatly appreciated.

You truly never know what people are going through - the invisible illnesses are real.

God bless,

Beau

Thank you for the warm welcome message. I have been struggling through long covid symptoms since November. I have been struggling with returning to work and challenging doctors who tend to make me feel frustrated and anxious, it's almost like they think I am fabricating it all The physical challenge is one thing, but the mental side is worse.

I struggled accepting that I can't go around charging full steam ahead doing everything at once.Then accepting that my body will let me down and spiral into full on symptoms that are only relieved by lying around and resting.

I am hoping that the pressure in my head and cramps all over will subside and I can clean my house in one day again .....

Thankyou for inclusion and welcome. I’ve been experiencing a lot of symptoms and now it all has a name. I’m off to a Respiratory Specialist this week and I can recommend Chinese Herbs. I’m eeking back some energy I got COVID in Jan this year. I’m unable to work as I can’t hold information, concentrate, think clearly or quickly. Reading is very difficult and I crash after a minimal amount of work is done. I think I need to stop trying. I am realising again how precious good health is. I wish you well, with kindness Nicole 💕

Good morning everyone!

Welcome to our new community members!

@brad.gunn @Jessie 🐙 @Nic @Virge @Kirsty Hillhouse @Deb @Jenn @Vivian

We would love for you to introduce yourselves here and to tell us a bit about your experience of Long COVID.

If you need any assistance with navigating the site (or any other questions or concerns!), please reach out.

Warmest,

Sally

Long COVID Support Admin

Hello Long COVID Support community 😊

A big welcome to our newest members!

@Bear @Abdul Aziz Abed @Larissa @Mo.do @KrystalOwl - If you're feeling comfortable, we would love to hear a little about yourself / your journey / what you're looking to gain from this group / or anything else that you would like to share as an introduction!

My name is Sally, I am one of the administration assistants for LCS. Please reach out if you need any assistance - I'm here to help!

Warmest,

Sally

Long COVID Support Admin

Thank you Eve for welcoming me to this group. Last week I had confirmation that I have long Covid after catching it back in July 2022. While the confirmation was on one hand, a relief that I wasn't imagining it or being 'dramatic', it was also very upsetting to learn that there really isn't much that can be done to get me back to 100% health ever again. So I guess we are all dealing with both the (various types of) physical debilitation and the huge psychological impact this has. I hope that joining this group will help me navigate these hurdles and perhaps I can glean some information or advice from those who have been battling too.

Thanks - Dee

Hello, Long COVID Support community 😊

Happy Monday! I hope that you're all doing well.

Just wanted to extend a warm welcome to the new community members who have joined us over the past couple of weeks @Bini @Spiceemman @AG123 @Ruralgal @Cam @Mary @Dee - If you feel comfortable to do so, please introduce yourselves to your fellow forum members!

My name is Sally, I am one of the administration assistants for LCS. Please reach out if you need any assistance - I'm here to help!

Warmest,

Sally

Long COVID Support Admin

Good morning, Long COVID Support community 😊

Happy Monday!

A very warm welcome to our newest members - @Ccam @JP @Kerry @Betty @Simone @Kate @Tracey- If you're feeling comfortable, we would love to hear a little about yourself / your journey / what you're looking to gain from this group / or anything else that you would like to share as an introduction!

My name is Sally, I am one of the administration assistants for LCS. Please reach out if you need any assistance - I'm here to help!

Warmest,

Sally

Long COVID Support Admin